Club Meeting

About the MND Association - Our reach

The MND Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

We fund 21 MND care centres and networks. These provide coordinated multi-disciplinary care which has been shown to improve quality of life and life expectancy for those with MND.

Last year, 3,495 people with MND used an Association funded care centre, this is approximately 80% of those with the disease of whom we are aware.

We fund research into MND and support scientific and clinical research communities in the UK and worldwide.

We organise an annual research conference which is the largest international research conference on MND. In 2016, it attracted over 1,100 delegates from 41 countries making it the largest in our history.

We have 9,000 members helping to strengthen our voice to ensure everyone with MND has access to the best possible care.

Our 88 volunteer-led branches and groups provide local support to people with MND, their families and carers. A growing number also hold separate support meetings for carers.

We have 322 Association Visitors who in 2016, provided support to 1,098 people with MND.

WE SUPPORT

We employ around 190 staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND.

We support hundreds of health and social care professionals who provide and manage services for people with MND through specialist education events and information provision.

We lobby the Government in London, the Welsh Government and the Northern Ireland Executive to ensure national policy reflects the needs of people affected by MND. We also campaign in coalition with other charities, through the Care and Support Alliance, the Association of Medical Research Charities, MND Scotland and others.

We are an active founder member of the International Alliance of MND/ALS Associations.

Our social media platforms are vital in helping us communicate the impact of our work. In 2016, likes on Facebook increased to 30,300 and we now have 24,000 followers on Twitter. Our website received 856,000 visits and our Thumb Print magazine is sent to over 7,500 Association members across England, Wales and Northern Ireland.

Our work is made possible by huge support from volunteers and is kindly funded by around 27,500 supporters who donate and fundraise on our behalf.